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A festival hopes to raise funds for one year old Delylah Harris - KOAM TV 7

A festival hopes to raise funds for one year old Delylah Harris

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A Pittsburg family is hoping to soon bring their daughter home from a Kansas City hospital. The Harris family's one-year old daughter Lylah has had two open heart surgeries. Friends of the family are holding an all day festival to help the family with medical and living costs. 

Lylahpalooza will begin at noon until 11 p.m. Saturday at the Crawford County Fairgrounds located at 247 E. Highway 47, just east of Girard, Kansas. 

It's the evening before the Lylahpalooza festival and friends of the Harris Family gathered to make final touches to the fairgrounds. 

"I remember the day BJ sent me the text, and said they were having a baby. We all got really excited then of course we found out the news," said Family Friend JJ Karlinger. 
  
"Delylah was born with a congenital heart defect know as tetralogy of fallot," said Lylah's mother Leslie Harris.

The defect changes the normal flow of blood through the heart. According to the national lung and blood institute it occurs in about 5 out of every 10,000 babies. 

"She (Lylah) still has a long journey ahead of her. She's always going to have health complications," said Harris.

Lylah's being cared for at Children's Mercy Hospital located in Kansas City, Missouri. 

The family was able to get a suite at the local Ronald McDonald House but still maintain a home in Pittsburg with Lylah's 5 year old sister. 

"Just to have the four of us in the same house is going to be miraculous," said Harris.  

It's overwhelming to see your own child in need Harris says, but with the support of family and friends the battle becomes easier to fight. 

"We are so appreciative I'm really looking forward to tomorrow just as reunion to see my friends and family that we haven't seen, and unfortunately this is the kind of situation that brings us back together but at the same time were lucky to have these people in our lives," said Harris.

"Every bit is going to help so we're looking for anything we can get just to help them out," said Karlinger.

If your unable to attend the Lylahpalooza but still would like to help you may send monetary donations to "Love for Lylah" at First Federal Bank, 102 N. Broadway, Pittsburg, Ks 66762 or give online at www.wepay.com/donations/loveforlylah <http://www.wepay.com/donations/loveforlylah> 

To follow lylah's story on website: <https://www.facebook.com/pages/Love-for-Lylah/365578020223523>

 

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