Quantcast

Woman's Struggle Brings "Hope Walk" to Joplin - KOAM TV 7

Woman's Struggle Brings "Hope Walk" to Joplin

Updated:
JOPLIN, MISSOURI -

The Team Hope Walk is this weekend, in Joplin. It's one of more than a hundred held across the country raising money for the Huntington's Disease Society of America. Huntington's Disease affects 30,000 Americans.. including a Joplin woman. 

"Kelly was always a person who liked to have a lot of fun," Team Hope Walk coordinator Darrin Henry said. "Like riding, shopping. No matter where she was at with the kids, she would try to make everything fun." 

In 1996, his wife Kelly Henry began noticing symptoms of Huntington's disease. 

"It was a minor symptom. It was like a twitching of a finger," Darrin said. 

Since 2013, she's needed around the clock care. 

"People help her with every aspect of life now," Darrin said. "Bathing, clothing. Your just normal things of life you take for granted. You know, she needs help with everything."

Huntington's disease causes nerve cells in the brain to break down. Sharing symptoms of ALS, Parkinson's disease, and Alzheimer's. It's fatal. It has no cure. Huntington's is hereditary. People with the disease have a 50% chance of passing it to their child. Kelly's father died of HD. Her two children have yet to show symptoms. 

"It's a rare disease so it doesn't get a lot of attention. That's one of the main reasons we do the walk," Darrin said. "Awareness and research dollars are the biggest things that we're wanting to do with the walk." 

Three years ago Darrin Henry started the Joplin Team Hope Walk. Funds go to HDSA, which focuses on education, advocacy, and research. 

"HD research can lead to possible treatments for other well known diseases," Christopher Cosentino of HDSA said. "So the research that's going on for Huntington's disease right now is incredible." 

Over the walk's first two years, Darrin says Joplin has contributed with more than 200 walkers and more than $24,000. This year looks to continue the trend. 

"I think it means a lot," Darrin said. "It provides people hope that have this disease. It shows people that are coming out to help them. And I want to do everything I can do in my power to help out. And that's why I'm involved in this walk."

The walk is Saturday, 10am, at Landreth Park. More than 100 walkers are registered, with a goal of raising $13,000. 

Online registration can be found HERE.

  • Local NewsMore>>

  • Local Woman Recalls Meeting Barbara Bush

    Local Woman Recalls Meeting Barbara Bush

    Saturday, April 21 2018 6:15 PM EDT2018-04-21 22:15:10 GMT
    Barbara Bush's passing has impacted many people in the country and that includes a longtime Joplin resident who had the opportunity to do Mrs. Bush's hair. Letha DeMier met the former first lady in November of 1998. Mrs. Bush visited Joplin to make a keynote speech at the Freeman Quality in Medicine Award. DeMier received a call requesting that she style Barbara Bush's hair before her speech. While DeMier says it was a little intimidating at first, she says the former first ...More >>
    Barbara Bush's passing has impacted many people in the country and that includes a longtime Joplin resident who had the opportunity to do Mrs. Bush's hair. Letha DeMier met the former first lady in November of 1998. Mrs. Bush visited Joplin to make a keynote speech at the Freeman Quality in Medicine Award. DeMier received a call requesting that she style Barbara Bush's hair before her speech. While DeMier says it was a little intimidating at first, she says the former first ...More >>
  • Happy 107!

    Happy 107!

    Friday, April 20 2018 7:26 PM EDT2018-04-20 23:26:42 GMT

    Two very special Neosho County women are approaching an amazing milestone. They're both turning 107 in the coming weeks. 

    More >>

    Two very special Neosho County women are approaching an amazing milestone. They're both turning 107 in the coming weeks. 

    More >>
  • Don't Ask for Bongs in this Joplin Store on 4/20...or Any Day...Despite What You See

    Don't Ask for Bongs in this Joplin Store on 4/20...or Any Day...Despite What You See

    Friday, April 20 2018 6:41 PM EDT2018-04-20 22:41:59 GMT

    "You're outta here."

    More >>

    "You're outta here."

    More >>
Powered by Frankly

KOAM - Licensed to Pittsburg, Kansas
Send tips, ideas and press releases to: tips@koamtv.com
Send newsroom questions or comments to: comments@koamtv.com
Phone: (417) 624-0233 or (620) 231-0400
Web comments or questions: webmaster@koamtv.com
Newsroom Fax: (417) 624-3158

Powered by WorldNow All content © Copyright 2000 - 2018 KOAM. All Rights Reserved. For more information on this site, please read our Privacy Policy, and Terms of Service, and Ad Choices.